Specific disabilities and organizations
Attention Deficit Hyperactivity Disorder
Autism Spectrum Disorder (includes Asperger Syndrome)
Communication Disorders
Down Syndrome
Emotional/Behavioral Issues & Mental Health
Learning Disabilities (includes non-verbal, processing disorders)
Other/More on Specific Disabilities
Rare Disorders/Diseases
Attention Deficit Hyperactivity Disorder
ADDA National Attention Deficit Disorder Association.
C.H.A.D.D. Children and adults with Attention Deficit/Hyperactivity Disorder is the largest national ADD/AD/HD organization.
CHADD of Northern California
Northern California branch of CHADD.
National Research Center on AD/HD
This site answers many of your questions about AD/HD, and directs you to other reliable sources online. New material is regularly added. The Center is a program of CHADD.
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Autism Spectrum Disorder (includes Asperger Syndrome)
ASA Autism Society of America. ASA also now has a convenient online referral database.
ASPEN of America, Inc
Asperger Syndrome Coalition
Autism Collaboration
Autism, Epilepsy, and Seizures: How to Recognize the Signs and Basic First Aid When You Do
Autism Source
Autistry Studios is an organization based in Marin County that helps teens and young adults with social, communication and learning differences explore their interests and develop their skills.
Center for Social Thinking, Inc. & Think Social Publishing, Inc.
Workshops, Training, Consultation, Assessment & Therapy For Persons with Social Thinking Challenges.
Family Resource Centers Network of California -- Autistic Spectrum Disorders Resource Project web pages, funded by the Department of Developmental Services.
FEAT Families for Early Treatment of Autism
HELPGUIDE.org: Helping an Autistic Child. Site includes tips for choosing treatments and finding support.
Insurance Support Groups for ASD -- these groups can help you learn how to get key services covered by your insurance provider. To join, send an email to: ASDInsuranceHelp-subscribe@yahoogroups.com
(If you have Kaiser as your HMO group, join the group Kaiser Spectrum Kids at: kaiserspectrumkids-subscribe@yahoogroups.com
Interactive Autism Network Community
Marin Autism Collaborative MAC is a local coalition of individuals on the autism spectrum, family members, service agencies, educators, non profit organizations, and government organizations. Their mission is to identify and address the service needs for all ages of individuals on the autism spectrum and their families.
The Maternal and Child Health Library at Georgetown University
The MIND Institute
National Autism Center
Sage Crossing Foundation
Schafer Autism Report
Securing Health Insurance Coverage for Autism Spectrum Disorder
Senate Select Committee on Autism and Related Disorders
Stanford School of Medicine - The Autism Project
Talk About Curing Autism
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Communication Disorders
American Speech-Language and Hearing Association
Apraxia Kids The Childhood Apraxia of Speech Association of North America (CASANA)
Center for Social Thinking, Inc. & Think Social Publishing Social Pragmatics
Cherab Foundation
National Coalition on Auditory Processing Disorders
National Association of the Deaf
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Down Syndrome
Disability Solutions (a.k.a. Creating Solutions)
Down Syndrome Connection of the Bay Area
Down Syndrome Information Alliance in Sacramento - host of the 2008 National Down Syndrome Congress Convention.
National Down Syndrome Congress
National Down Syndrome Society
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Emotional/Behavioral Issues & Mental Health
American Academy of Child & Adolescent Psychiatry
Bazelon Center for Mental Health Law
Calif. Dept of Ed Positive Environments Network
Center on Positive Behavioral Interventions & Supports
Center for Effective Collaboration & Practice
Council for Children with Behavioral Disorders
Child & Adolescent Bipolar Foundation
Child Trauma Academy
Depression and Bipolar Support Alliance
Federation of Families for Children’s Mental Health
Foundation for Children with Behavioral Challenges
Juvenile Bi-Polar Research Foundation
Mental Health America
NAMI National Alliance for the Mentally Ill | NAMI Blog
National Mental Health Association
National Obsessive Compulsive Foundation
NATSAP National Association of Therapeutic Schools and Programs
NYU Child Study Center
Project Reach is a National Center, funded by the Office of Special Education Programs, to work with students with intensive social, emotional, and behavioral needs. They've taken the most effective interventions from the research and translated them into easy step-by-step directions for implementing them in the home setting.
The Reach Institute - The Resource for Advancing Children's Health
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Learning Disabilities (includes non-verbal, processing disorders)
www.rti4success.org | National Center on Response to Intervention
All Kinds of Minds – Mel Levine
Educational Therapists
Great Schools (formerly Schwab Learning): A comprehensive on-line resource for parents of children with learning difficulties.
The International Dyslexia Association (IDA) is an international, non-profit, scientific and educational organization dedicated to the study and treatment of dyslexia.
IDAs' Fact Sheets on Dyslexia and Related Language-Based Learning Differences are particularly helpful.
LD Online
The Learning Disabilities Association of America (LDA) is a national, non-profit organization, whose purpose is to advance the education and general welfare of children and adults of normal or potentially normal intelligence who manifest disabilities of a perceptual, conceptual, or coordinative nature
The Learning Disabilities Council offers free downloadable materials for parents.
LD Resources was created by Richard Wanderman, master teacher of students with learning disabilities and creative Macintosh guru.
The National Center for Learning Disabilities provides essential information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster effective learning and advocates for policies to protect and strengthen educational rights and opportunities
NLD on the web -- website on Nonverbal Learning Disorders.
NLDline has detailed information about Nonverbal Learning Disabilities.
Nonverbal Learning Disorders Association
Recordings for the Blind and Dyslexic
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Other/More on Specific Disabilities
American Association on Intellectual and Developmental Disabilities
The ARC The Arc is a national voluntary organization committed to the welfare of all children and adults with mental retardation and their families.
Brain Injury Association
Center for Effective Collaboration and Practice
CECP focuses on "improving services for children and youth with emotional and behavioral problems."
Charge Syndrome -- The Charge Syndrome Foundation, Inc. has created an informational packet for professionals and families.
Council for Exceptional Children
The Council for Exceptional Children (CEC) is the largest international professional organization dedicated to improving educational outcomes for individuals with exceptionalities, students with disabilities, and/or the gifted. CEC advocates for appropriate governmental policies, sets professional standards, provides continual professional development, advocates for newly and historically under served individuals with exceptionalities, and helps professionals obtain conditions and resources necessary for effective professional practice.
Creating Solutions was established in 2005 as the entity to publish, Disability Solutions, established in 1995.
Dyspraxia USA
Easter Seals provides services to children and adults with disabilities and other special needs, and support to their families.|
Exceptional Parent Magazine is an ongoing resource for families with children with any disability.
Family Village
A host of resources for parents of children with any disability.
IMPACT - a statewide organization that supports families with deaf and hard of hearing children.
National Fragile X Foundation
Martindale’s Language & Translation Center Sign language databases on line.
Sensory Processing – Bay Area
Sotos Syndrome Support for families and individuals who have Sotos Syndrome.
Supported Life Institute Advocating Inclusive and Dynamic Communities
TASH TASH is an international membership association leading the way to inclusive communities through research, education, and advocacy. TASH members are people with disabilities, family members, fellow citizens, advocates, and professionals working together to create change and build capacity so that all people, no matter their perceived level of disability, are included in all aspects of society.
Tourette Syndrome Association, Inc.
Uniquely Gifted -- a website for intellectually gifted children with special needs such as AD/HD, Learning Disabilities, Asperger Syndrome, etc.)
United Cerebral Palsy Association UCP's Mission is to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities.
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Rare Disorders/Diseases
California Genetically Handicapped Persons Program
Genetic Alliance
National Organization for Rare Diseases (NORD)
NIH Office of Rare Diseases Research -- includes the Genetic Alliance Against Chronic Respiratory Diseases (GARD).
Helpful websites for connecting with other families coping with diagnoses of rare disorders:
Mums National Parent to Parent Network
Rare Chromosome Disorder Support Group
RareShare
NORD's Parent Support Community
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Please note: Matrix does not endorse or recommend any provider, treatment, or philosophy that families may encounter from the resources, events, or websites listed. Matrix encourages you to obtain more information about any resource prior to selecting a provider.
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